Discovery Company. "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. Growing up, I didnt have any role models that were sick that were doing anything with their life, ever. The Times-Picayune. You are an inspiration and brought joy to many. She was a born artist and made her appearance in The Music Man, at around 4 years of age. Its so much easier to believe that sick people are cherubs- held in perpetual youth and innocence- who simply dont understand the truth of their condition because they are living up in the clouds. The social media sensation died Sunday, a week after she suffered a stroke following surgery for a double lung . The Foundation has funded more than 26 families till now. Submit an Obituary. Im grateful for the chance to keep being a person. Read full obituary. My parents are divorced. She had a popular YouTube channel, gave . She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents future if it didnt go well. I have my mother and Ellie is my sister. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. According to doctors, she had a survival chance of 1%. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. She did. Claire Lucia Wineland (April 10, 1997 September 2, 2018) was an American activist, author, speaker and social media personality. 2:33 PM EDT, Tue September 4, 2018. She had a popular YouTube channel, gave Harris (19912023), American Idol contestant, Keenan Cahill (19952022), YouTube celebrity lip syncer, Lupe Serrano (19302023), ballerina who danced with Nureyev, Joseph Jo Mersa Marley (19912022), reggae musician and grandson of Bob Marley. At the age of 4, she made an appearance in The Music Man. Due to her illness she spent most of her childhood in hospitals. On September 2, 2018, she passed away peacefully, at the 'US San Diego Thornton Pavilion.' Her organs were donated to needy patients. Search by Name. When she turned 13, she had a routine surgery that led to a blood infection that caused lung failure after which she was placed in a medically-induced coma. It hurts everything inside of me to make this video, she said into the camera. A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social media has died after receiving a lung transplant. They had been on the receiving end of that call just one short week ago. Laura McHolm, Chairman of the Board of Claires Place Foundation. In 2017, Yeager recalled a conversation with Claire about death. You are an inspiration and brought joy to many. https://www.thefamouspeople.com/profiles/claire-wineland-42459.php. [11], On August 26, 2018, Wineland underwent a double lung transplant. She had a popular YouTube channel, gave Claire Lucia Wineland (April 10, 1997 - September 2, 2018) was an American activist, author, speaker and social media personality. When she was unable to create videos due to declining health, the company cut her off. Given the severity of the stroke and Claires advance directive, it became clear that it was time to let her go. On Monday afternoon, her mother received word that Claire had already made a difference. appreciated. Claire was an activist, author, TEDx Speaker, social media. She starred in the CW series My Last Days, which features real people with life-threatening illnesses. Your email address will not be published. I'm grateful for the chance to keep being a person," she said. Today, Claires Place Foundation continues to carry on Claires legacy. At the time of birth, she had the life expectancy of only 5 years old. Her organs were made available for transplant. As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. Why a terminally ill young woman has changed her mind about living. Claires remarkable family were so happy for the other families that were now getting the calls that the organ they had long been waiting for was now available for transplant. [2] Inspired by the community's support while she was in a coma, she launched the 501(c)(3) non-profit to provide support to children with cystic fibrosis and their affected families. We invite you to share condolences for Claire Wineland in our Guest Book. I'm not an innocent and I'm not a child," she wrote in March. Her organs were made available for transplant. The medical team that tended to her became family. It's not about how you feel second to second," she said. Find an Obituary. The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. "I didn't realize how much I didn't expect to live this long. Claire took the gift of life and her health seriously, but she didnt take herself too seriously. "Death is Inevitable. Life isnt just about being happy. She loved every moment of her life, even those days when she was in hospital. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, Maximum two drinks a week, Canada guidance advises, US porn star declared unfit for sex crimes trial. "Claire was able to save the life of two people, her right kidney was transplanted to a 44 year old woman in San Diego, and her left kidney was transplanted to a 55 year old male in Northern California. She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. When I was younger and obsessed with becoming an artist, the hospital was my New York loft apartment. Despite emergency surgeries, and what her mother described as Herculean efforts to try to save her, the daughter she knew was gone. Her foundation said she had died peacefully, surrounded by family. Jace Prescott died at age 31, too young. Claire Wineland Popularity Most Popular #8596 Born on April 10 #35 Entrepreneur #31 Wineland enjoyed performing on stage from a young age. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. Its about what youre making of your life and whether you can find a deep pride in who you are and what youve given.. On August 26, 2018, Wineland suffered a stroke due to a blood-clot that stopped blood flow to the right side of her brain. On September 2, 2018, at 6:00 pm, she took her last breath at the UC San Diego Thornton Pavillion, a week after undergoing a lung transplant. She was also a speaker for the motivational TEDx Talks.. Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care. She needed financial help. She was a Fox Teen Choice Award honoree in 2015[14] and received the Gloria Barron Prize for Young Heroes[3]and Los Angeles Business Journal's Small Nonprofit of the Year Award in 2014.[15]. By asking for it, she said, she could relax and get in the headspace for whatever would come next.Before signing off, Claire implored viewers to do one thing. Extended Hospital Stay Grants provide financial assistance to families who find it difficult to arrange funds for an extended hospital stay. She has gone on to become an advocate for others suffering from the disease she has had since birth. I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. Wineland hosted many videos for the channel. Claire was an activist, author, TEDx Speaker, social media star and received numerous awards. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. She attended the Santa Monica College, in California, but had to drop out of college, due to her illness. Associated With She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. she posted on Twitter, not long before she was wheeled into the operating room in San Diego. Really. Im just really overwhelmingly grateful for all of this. "Go enjoy your life. Wineland was moved by the communitys support when she was in coma. She appeared in an episode of Red Band Society and in the documentary series My Last Days. Last night at 6 pm- my dear friend and little soul sister -Claire took her last. I would move the furniture around to create space on the floor, throw down some sheets and indulge in any form of art that I could get my hands on. She grew up loving to perform and landed her first role inThe Music Manat 4 years old. Get to know the real life super hero behind our bubbly Snap identity. [10], Wineland continued to operate her YouTube channel and uploaded nine videos prior to her death. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. She was of the mind that she would leave this world with the body she came in with. Sign up here to get The Results Are In with Dr. Sanjay Gupta every Tuesday from the CNN Health team. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. To face each day, Claire Wineland undergoes hours of breathing treatments. Claire Wineland as a kid She grew up in a broken family as her parents got separated when she was 3 years old, but her parents always came together in her care. ", Claire Wineland, reflecting on her outlook on life. [2] According to the website, Wineland's activism aimed "to shed some light on what it's really like to be sick, and change the way we view illness and those living with it.[2], On August 7, 2017, after not uploading any videos for over a year, Wineland returned to YouTube with a new account under her real name. A double-lung transplant, when successful, can add years to a patient's life.Claire's parents learned to trust their independent and strong-willed daughter. She watched one of her doctors squirm as he gave her the safe-sex talk. Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. She revealed that The Clairity Project was not under her control. "Its been a very long few days and I wanted to give everyone an update on how Claire is doing", "Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball', "Who Is Claire Wineland? James Watt Cause of Death, Age of Death, and Other Facts! Claire | The Documentary 4,508,139 views 3 years ago Directed by Oscar-winning filmmaker Nick Reed & Ryan Azevedo, the film tells the story of activist and Claire's Place Foundation Founder. She performed with Philips Breathless Choir, as a solo singer. She has gone on to become an advocate for others suffering from the disease she has had since birth. Nipsey Russell Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! What happened in the Ukraine helicopter crash? Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. She inspired countless people, invited -- no, demanded -- honest talk about illness and mortality, and brightened the worlds of those she touched with her smile, spunk and spirit.On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. Sense of injustice lingers after Seoul Halloween crush, Chess gets a risqu makeover. I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in that way. However, her illness forced her to leave the platform in 2017. "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. "It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given. Last night at 6:00pm, Claire Wineland our inspirational founder passed away. It was a welcome, albeit terrifying, development for those who loved her. None of it spooked me, Claire said afterward. Magnolia Shorty Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Living a life we can be proud of is something we can control." - Claire Wineland. Your effort and contribution in providing this feedback is much Here are some ways. Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. The nine-hour surgery went well, and her mother reported that the lungs were working great. It was a welcome, albeit terrifying, development for those who loved her.To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. Is there someone you miss whose memory should be honored? She is dynamic and so soul filled, a little angel, rest in Peace Claire, YOU are MY HERO, Your email address will not be published. Shed worked hard to get there, was focused on her self-care and getting stronger. By mid-August, she was back on and feeling ready. View All 253 Entries. The Plain Dealer. Who was Ukrainian minister Denys Monastyrsky? Everything I'm proud of comes from some of the darkest things in my life. Claire Wineland, social media personality who spoke about living with cystic fibrosis, died Sunday, Sept. 2, 2018, of complications after suffering a stroke following a double-lung transplant,. [3] At age 13, her lungs failed and she was placed in a medically-induced coma. Claire and her mother beamed in a photo posted on social media after they learned her transplant was a go. A double-lung transplant, when successful, can add years to a patients life. Biography - A Short Wiki Entrepreneur and founder of the award-winning non-profit organization Claire's Place Foundation, which provides support to families living with Cystic Fibrosis. YouTube Originals released "Claire," a documentary about Wineland, which was directed and produced by Academy Award winner Nicholas Reed (The Lady in Number 6) and Ryan Azevedo ("Unpinned") and produced by Paul Foley (Unpinned). Read about our approach to external linking. The median survival age is 40, the foundation reports, which is a great improvement from the 1950s, when surviving long enough to attend elementary school was rare. She played hide-and-seek with nurses and left explosions of glitter in her wake. Get breaking news alerts& today's headlines inyour inbox. When it came to her care, she knew her body best -- what worked for her, what didn't and how far she was willing to go.So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. Pink Floyd, The Beatles, The Killers, The Rolling Stones, Ben Harper, Dr. Who, Dexter, Adventure Time, SpongeBob SquarePants, Harry Potter by J. K. Rowling, The Mortal Instruments by Cassandra Clare. Claire Wineland 1997 - 2018 BORN 1997 DIED 2018 CLAIRE WINELAND OBITUARY Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to. I didnt expect to have a chance. Im grateful for all the people who donated to help me get through transplant. . There is no passionate rant to be had here I am just happy and thought I would let you all know. Hap Moran Cause of Death, Age of Death, and Other Facts! She wanted to help other affected families too. Its not for me and never has been.. Its not about how you feel second to second, she said. She was chosen to be the keynote speaker at the 63rd International Respiratory Convention and Exhibition. She was a crusader for the patients who suffered from cystic fibrosis, and other terminal illnesses. At one point, Claire looked at her mom and said, After you die, youre closer to everyone you love because youre part of everything, Yeager remembered. They saw her into this world for her first breath and were with her for her last, Laura McHolm, the board chair for Claires foundation, wrote in a Facebook post. 2023 Cable News Network. "I had to be honest," she once explained. She needed financial help. She was born in Austin, Texas with Cystic Fibrosis and spent roughly 1/3 of her life in the hospital. Despite facing a life-threatening disease, she always remained positive, smiling and motivated people with her speeches and activities. @larissaperoux We some cheese balls just cheesing it up. At a TEDx talk she gave last year, Claire made a point of saying how cystic fibrosis helped give her a quality of life. The median survival age is 40, the foundation reports, which is a great improvement from the 1950s, when surviving long enough to attend elementary school was rare.The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. Also, Claires corneas and tissue was recovered and she will be able to enhance the life of up to 50 people, a family services specialist wrote to Yeager in an email message. The gift of life: Recipient of an organ donation herself, her organs were donated after her death. Her survival inspired her to start- Claires Place Foundation, a, She was proficient in American sign language.. I want to see what happens in life. The BBC is not responsible for the content of external sites. Who is Claire Wineland? Through videos, she shared her feelings, and her thoughts on cystic fibrosis, and life expectancy. Ive struggled more with guys, depression drugs, family and career than I ever have with my illness. Required fields are marked *. Claire Wineland became renowned for her posts about illness and mortality on social media A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social. Though there was only 1% chance of her survival, she miraculously came out of it after 16 days. So grateful for everything this month. [4], Wineland was born with cystic fibrosis in Austin, Texas. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited cures, telling her to eat more pineapple or that a mushroom cleanse would take care of everything. . She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. The years of telling myself I can do it on my own are over. She was 21 years old. Swami Vivekananda Cause of Death, Age of Death, and Other Facts! I'm Claire's little sister and I'd just like to say that I" I'm Claire's little sister and I'd just like to say that I really really appreciate all the kind" 115k Likes, 5,583 Comments - Claire Wineland (@claire.wineland) on Instagram: "hey this is Ellie (@ellebell_74 ).. As she faced the prospect of getting a double-lung transplant, she understood how desperate she was to live and give more. I'm grateful for the chance to keep being a person," she said. Due to her life treatning disease, she spent the majority of her life in hospital. She was a wonderful person and the world . Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. The BBC is not responsible for the content of external sites. 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